Hi, achh, my name is, achhhh, Marc Elliot. I tell people, ahhhhdaddad, my professional title is, grrrrr, “Motivational Speaker on Tolerance,” nigfuckdad. I know you might be a bit confused. If you’re thinking the editor made some egregious editing errors in the previous sentence, you’ll be surprised to know that those “words” are far from errors.
I suffer from the neurological disorder called Tourette’s syndrome (TS). My symptoms started at the age of five with little tics like eye blinking, nose sniffing and repetitive phrases like “excuse me excuse me” and “I love you.” Little did I know that I was embarking upon a life that embodied the word different, despite being male, white, and growing up in the suburbs of St. Louis. One would also think that having TS would be enough to qualify an individual to be an “expert” in the field diversity and tolerance, but in my life, I, of course, love to be different. When I was just two days old, the doctors told my parents that I was born with an incredibly rare intestinal disease that left me virtually no working intestines. It’s about as pleasant as it sounds. To make a long story end with a smile, I now have only four feet of intestines (compared to the standard length of 20 feet), and miraculously lead a fairly normal gastrointestinal life. The only catch is that I now have completely liquid and embarrassing-sounding bowel movements about 5-8 times a day. I know you’re wondering, so yes - that is a lot of times to go in one day!
To me, the most fascinating aspect of dealing with these challenges is being so different, in a more unusual way. Let me explain: From our schooling, the media, parents, and everything in between we’re all constantly bombarded with messages of diversity that point out the many macro issues that define our individuality: sex, race, creed, national origin, color, sexual orientation, etc. Yet even with all these attributes that clearly define us, my specific challenges, especially TS, seem to transcend them all. By saying inappropriate words, making weird gestures, producing loud sounds and more, I have learned first hand how people treat and react to someone who is actually so very different. The reactions I receive from people vary. Sitting at the San Francisco International Airport, you’d think that there are plenty of “different” people here and my noises and movements would just blend in. Well, you’d think wrong. Even with all of these people, most eyes are on me.
Although these challenges combined seem a bit grim, let me assure you there are some incredible advantages. First and foremost, because of the way my intestinal track is now configured, I now have the inability to fart; thus, if it smells, it definitely wasn’t me! Secondly, with TS I was the undisputed champion of the “PENIS” game in high school.
All jokes aside, these challenges are very real – and have provided me the chance to learn invaluable lessons about tolerance. And now I have the incredible opportunity to share my message of tolerance all around the country.
A year ago, I created the presentation “What Makes You Tic.” Filled with memorable stories and anecdotes, I try to teach tolerance in a relatable and realistic manner. What do I mean by that?
From the first day of kindergarten, we’re told to accept and embrace everyone’s differences. That is honestly a great thing that we teach children highly idealistic principles during such formative years in human development. But as we all get older, we all know that is just not how life works. The idea that we “just have to accept everyone and their differences” completely neglects some of our most basic human instincts – our instinct to make completely unfounded and baseless assumptions about other individuals. It’s not wrong, it just happens. The reason I say I teach a “realistic” approach of tolerance is to give audiences total permission to continue to make assumptions about those who are different. It might be incredibly difficult to change one’s assumptions and perceptions about those who are different. What is easy to change though, is the way in we one acts upon those assumptions.
Instead of talking about tolerance in the “we have to embrace differences” manner (because, let’s be honest, it’s a nice idea but not realistic), I teach tolerance with the phrase “live and let live.” It’s the idea that “I am going to live my life and I am going to let others live theirs. By sharing my challenges and encounters of intolerance, I bring audiences into my life in hopes to remind them of how little we know about other people’s live and what they are going through on a day-to-day basis.
The bottom line is, no one wants to be told what he or she can or cannot think. We can all make assumptions about other people who have different skin colors, or look different, or smell different, or make loud noises, who have liquid bowl movements, or play their iPods way too loud, or are just plain annoying and rude. What’s important, though, is that we don’t turn those assumptions into actions. Because doing so could, in turn, negatively impact someone’s life all because of our own ignorance. Maybe that person is just being rude because he or she is unkind. On the other hand, maybe that person was rude because his or her parents recently divorced, or maybe he or she is dealing with depression, an eating disorder, anxiety, schizophrenia, or a death of a close friend - the possibilities are endless.
Being a tolerant individual isn’t about accepting everyone. Nobody is perfect, but no matter our age, tolerance is something we all should aspire to. Being a tolerant person is about recognizing how little we truly know about others. It is about living a life in which you are able to freely live yours and, most of all, you allow other people to freely live theirs - - “Live and Let Live.”
Marc Elliot knows the importance of understanding people's differences and he is now inspiring audiences all across the country by sharing his life story to convey the value of tolerance and the basic attitudes and behaviors that allow it to flourish.
Marc can be reached at marc@whatmakesyoutic.com. or on his website www.whatmakesyoutic.com.
Wednesday, May 19, 2010
Wednesday, March 17, 2010
Early Knowledge Of A Child With A Special Need
You have a beautiful new baby and he/she has a label that may scare the begeebees out of you. First off, congratulations! Your baby has finally arrived and despite the possible fear that may reside within you now, if you embrace your child and not your child’s label, I promise the pro’s will outweigh the con’s.
You have the wonderful opportunity to learn a new language, the likes of which you may never have imagined. Within your first months together, you’ll learn biological words, baby words, and you will likely learn some therapeutic lingo that invariable comes with having a special needs child. However, the most amazing language you will learn will be the very unique one between you and your child.
If you don’t have a social worker for your child, you need one now. Go to your CLSC and get your child’s name on a waiting list. It’ll make your life easier. Yes, you may have up's and down’s with the whole process, but without a social worker, you probably won’t get anywhere. The social worker has many suggestions of what can be done next. Believe me, there are a lot more things to do, but get your child’s name out there.
The first few months can be overwhelming, but early intervention with the baby and the parent is the best start.
When my babe was born, I quickly heard of Emily Kingsley’s ‘Welcome to Holland ’. It helped to remove my metaphorical blinders. I hope by passing it on, it will help you like it helped me.
Erika Tencer is co-founder of Empowerment - A Special Needs Network and a therapeutic recreation specialist. She can be reached at 1.514.603.4446.
Welcome to Holland
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy . You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice . You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland ."
" Holland ?!?" you say. "What do you mean Holland ?? I signed up for Italy ! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy , less flashy than Italy . But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy ... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy , you may never be free to enjoy the very special, the very lovely things ... about Holland .
You have the wonderful opportunity to learn a new language, the likes of which you may never have imagined. Within your first months together, you’ll learn biological words, baby words, and you will likely learn some therapeutic lingo that invariable comes with having a special needs child. However, the most amazing language you will learn will be the very unique one between you and your child.
If you don’t have a social worker for your child, you need one now. Go to your CLSC and get your child’s name on a waiting list. It’ll make your life easier. Yes, you may have up's and down’s with the whole process, but without a social worker, you probably won’t get anywhere. The social worker has many suggestions of what can be done next. Believe me, there are a lot more things to do, but get your child’s name out there.
The first few months can be overwhelming, but early intervention with the baby and the parent is the best start.
When my babe was born, I quickly heard of Emily Kingsley’s ‘Welcome to Holland ’. It helped to remove my metaphorical blinders. I hope by passing it on, it will help you like it helped me.
Erika Tencer is co-founder of Empowerment - A Special Needs Network and a therapeutic recreation specialist. She can be reached at 1.514.603.4446.
Welcome to Holland
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy . You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice . You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland ."
" Holland ?!?" you say. "What do you mean Holland ?? I signed up for Italy ! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy , less flashy than Italy . But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy ... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy , you may never be free to enjoy the very special, the very lovely things ... about Holland .
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